Wednesday, May 23, 2007

Update

Hello all,

Yesterday we were told Amna had pain in her stomach and needed to be operated of her appendicite. Apparently, this morning, Amna is not feeling any more pain and wil not be operated.
We have established contact with the French Embassy in KL and they have referred us to their "official" malaisian doctor, who we are contacting today to see if he can help us. We need to have complete and precise information on Amna's condition to start any procedures bringing her to France. And the malaysian doctor in Penang who is treating her has not been able to communicate clearly with us on this.
We are happy for now the operation was upheld because operating in her state might have been very dangerous.
Thanks so much to all of you who have been supportive, financialy and emotionaly. You can still send us messages of support or little stories for Amna until friday night for us. We will be getting them to her on saturday through a friend who is travelling to Penang to renew his visa.

Chers amis,

Hier on nous a dit qu'Amna avait une crise d'appendicite et allait devoir être opérée hier soir. Ce matin par contre Rizal vient de nous annoncer que l'opération n'a pas eu lieu, et qu'Amna n'a plus mal...
Nous avons établi contact avec l'Ambassade de Kuala Lumpur et ils nous ont transmis le contact de leur médecin réferrent. Nous allons le contacter aujourd'hui et voir s'il peut nous aider. Nous avons besoin de quelqu'un pour confimer l'état précis d'Amna niveau médical vu que nous n'arrivons pas à communiquer avec son médecin traitant à Penang.
Nous sommes contents que l'opération a été annulée car opérer Amna maintenant pourrait être très dangereux pour elle.
Merci a vous tous pour votre soutien financier mais aussi émotionnel: vos messages sont géniaux, et nous les lui transmettront samedi. Pour ceux qui n'ont pas encore envoyé, vous pouvez jusqu'à vendredi soir pour nous. Un ami part à Penang samedi pour renouveller son visa et nous lui transmettrons par ce biais.
Bisous à tous
Emily

Tuesday, May 22, 2007

Wednesday the 23rd, UPDATE

Dear all,

Amna and Rizal are still in Penang. Amna has not been able to eat for the last two days and was complaining about stomach pain. Turns out it is most likely her appendicite. They are scanning her today and might be operating her soon. She is not transportable this week so it looks like it's going to be hard to bring her to Singapore for a checkup.
Her doctor in Penang has specified that she will need a doctor to accompany her if she takes the plane (for Singapore and/or France).

IF YOU KNOW OF ANY DOCTOR WHO IS QUALIFIED AND FREE: PARENTS, FRIENDS, ETC...
It's always good to have options.

Our work colleague is going to Penang for his visa on saturday and we will be giving him a gift and letter for Amna. If you guys want to send me messages of support for her we will translate them and give them to her also. I think it would be great to do that.

Thanks,
Emily

Big Hearted Friends

A hug thank you to all of you that have answered our mails and are raising money around them or simply making a personal donation. You are great.

THANK YOU

All new donors will be added to the mailing list... If a donor wants specific information he can always contact me personally.

Prendre de l'avance

Ce qui est dur, c'est qu'il faut en avance prendre des mesures au cas où:
1. Préparer les demandes de visa pour Amna et un de ses parents
2. Chercher des fonds que nous n'aurons peut-être pas à utiliser
3. Cherche et contactez toutes personnes qui pourrait aider si Amna venait en France.
4. Trouver en avance d'éventuels traducteurs indo-anglais-français

J'ai trouvé un site qui s'appelle Jeunes Solidarité Cancer et qui a l'air très bien. Je les ai contacter avec l'histoire d'Amna.

Jeunes Solidarité Cancer: association pour briser l'isolement des jeunes adultes atteints de cancer et des proches
http://www.jscforum.net/

Monday, May 21, 2007

Letter I have been sending around

Dear family and friends,

As most of you know, Abel and I have been helping a little girl called Amna that has leukemia since September. We managed to find funds for all her medical costs since September, as well as building a strong support network in France, England and the USA. We also managed to find support for an eventual coming of Amna to France for her bone marrow transplant. The ex-French President himself committed to helping us bring Amna to France for her transplant. We have several organizations in France providing us with financial and emotional support (Together against Leukemia is one of them), as well as recognized doctors willing to help Amna.

Around two months ago, Amna was at her best and the doctors in Penang, Malaysia, where she's been treated, told us that she had managed to battle the disease. Even our French leukemia specialist who was helping us said Amna might not need a transplant after all.

Unfortunately, Amna had to be rushed back to Penang on Saturday because she was not feeling well. We learned yesterday morning that Amna has two months to live if she is not transplanted. We are "re-activating" all our networks in France and are hoping we will be able to organize this quickly enough.

We need money to
1. finance her trip to Singapore to undergo full check up by a doctor
linked to our doctor in France.
2. finance an eventual trip to France even though our friends and
family will host the family (Amna and one parent) and provide them
with food
2. In the worst case, finance Amna's family's trips to Penang in the
coming two months.

That is why we are asking you for a big favor: help us mobilize people around Amna. I know it is always delicate to ask money to people, but if we can all sensitize a few friends and collegues around us and raise a few funds, we can do a lot to help Amna. If each one of us gives a little, it makes a big difference.

I have many pictures and reports about Amna I could forward. As we are in an emergency, I have not taken the time to print or send them. Everything is transparent and all donors can check our finances. We also have a special Bank Account at Band Mandiri for Amna: you can contact me directly for the Bank Information.

Here is my personal cell phone:
Emily FRANCOISE +0062 81360910601
emilyfrancoise@gmail.com

Please find attached a picture of Amna, her parents and myself in Penang Hospital a few months ago. Also, please forward this to all people you know.

We have a website for Amna where you can learn everything:
http://saving-amna.blogspot.com/

And thanks in advance for your help,

Very sincerely,

Emily FRANCOISE

WHO IS DOING WHAT

Right now:

1. People in France are trying to contact the French President and tha ministries that were involved in Jacques Chirac's committment to Amna two months ago.
2. We are trying to raise money in France and Aceh. If you have any ideas, please contact me emilyfrancoise@gmail.com

I have just talked to Amna's doctor in Penang. We have until wednesday morning to try and get a commitment and action from the doctors, Air France, and other partners that had already said they would help.

3. I am organising in advance all the visa documents needed. If any of you have contacts at the French embassy or consulate, please share them!

Sincerely,
Emily

Amna's Health Worsens...

Dear All,

I come with bad news from Penang. Amna had to be rushed back to Penang on Saturday, where the doctors found her in very bad shape. The Penang doctor even had to call Kuala Lumpur for Medical advice.

The doctors told Rizal Amna had two months to live. This comes as a big blow after we thought Amna had managed to battle the disease and wouldn't need a bone marrow transplant.

BUt now she does, and we have VERY LITTLE time to act. I am contacting all our network in France and trying to organize her coming to France. As a reminder, we ALREADY HAVE A DONOR for Amna in France.

We have to call the doctor in Penang and give an official answer on wednesday morning.
Amna can not get a last chemo without it being followed by the transplant, as her body would not handle another chemo. And if she doesn't get a chemo and a transplant, she will not survive.

I will write more with news.
Keeping Amna in our prayers all over the world,

Emily